Your life, your choice:
Advance Care Planning for Serious Illness
Organizations
Altarum
a non-profit research and consulting organization that creates solutions to advance health in vulnerable and publicly insured populations
American Psychological Association
https://www.apa.org/topics/death/index
provides resources for end-of-life care
Annuity.org
https://www.annuity.org/retirement/estate-planning/making-a-will/
An online resource with financial planning information, including information about estate planning
Archdiocese of Boston, Initiative for Palliative Care and Advance Care Planning
https://www.bostoncatholic.org/palliativecare
provides education, outreach and advocacy that will inform the public about palliative care
Ariadne Labs
a joint center for health systems innovation at Brigham and Women’s Hospital and Harvard T.H. Chan School of Public Health, develops simple, scalable solutions that dramatically improve the delivery of health care at critical moments to save lives and reduce suffering
Association for Death Education and Counseling
an international, professional organization dedicated to promoting excellence and recognizing diversity in death education, care of the dying, grief counseling and research in thanatology
Cambria Health Foundation
https://www.cambiahealthfoundation.org/
the corporate foundation of Cambia Health Solutions, a total health solutions company dedicated to transforming the way people
experience health care
Center to Advance Palliative Care
a national organization dedicated to increasing the availability of quality health care for people living with a serious illness
Coalition to Transform Advanced Care C-TAC
dedicated to the ideal that all Americans with advanced illness receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity
Compassion and Choices
https://compassionandchoices.org/
provides information about palliative care and end of life care, and is focused on changing laws related to medical aid in dying
The Completed Life Initiative
an organization to promote self-determination and dignity at the end-of-life
The Conversation Project
https://theconversationproject.org
an initiative of the Institute for Healthcare Improvement, a not-for-profit organization that is a leader in health and health care improvement worldwide, founded by Pulitzer Prize-winning writer Ellen Goodman and a group of colleagues and concerned media, clergy and medical professionals gathered to share stories of “good deaths” and “hard deaths” within their own circle of loved ones
Death Café
a group-directed discussion of death with no agenda, objectives or themes
Death Over Dinner
provides a script for people who want to discuss their end-of-life issues with family and/or friends
Elisabeth Kubler-Ross Foundation
https://www.ekrfoundation.org/
a volunteer-based organization inspired by the life of psychiatrist, humanitarian and hospice pioneer, Dr. Elisabeth Kübler-Ross
Honoring Choices Massachusetts
https://www.honoringchoicesmass.com/
a consumer oriented non-profit organization focused on the rights of every adult to direct their health care choices and make a plan to receive the best possible care that honors their values & choices
Hospice and Palliative Care Federation of Massachusetts
represents hospices that serve more than 21,000 patients and their families representing 40% of all those who die in Massachusetts
International End of Life Doula Association
fosters the use of end-of-life doulas
Massachusetts Caregiver Coalition
http://www.maroundtable.com/caregiving.html
an initiative of the Massachusetts Business Roundtable to support unpaid family caregivers
Massachusetts Coalition for Serious Illness care
created to ensure that health care for everyone in Massachusetts is in accordance with their goals, values and preferences at all stages of life and in all steps of their care
Massachusetts eHealth Institute
part of Mass Tech Collaborative, the designated state agency for promoting Health IT innovation, technology and competitiveness to improve the safety, quality and efficiency of health care across the Commonwealth of Massachusetts
Massachusetts Health Decisions
https://masshealthdecisions.org/
provides public and professional education on ethical issues in healthcare
Massachusetts Medical Orders for Life Sustaining Treatment
a joint pilot project of the Massachusetts Coalition for Serious Illness Care, Ariadne Labs and Honoring Choices Massachusetts with support from Vynca, Inc. to document patient choices on a paper and electronic MOLST form
National End of Life Doula Alliance
membership organization for all end-of-life doulas and trainers
National Healthcare Decision Day
https://theconversationproject.org/nhdd/
exists to inspire, educate and empower the public and providers about the importance of advance care planning, administered by The Conversation Project
National Hospice and Palliative Care Organization (NHPCO)
provides resources and legislative services to hospice care providers
Respecting Choices
https://respectingchoices.org/
an internationally recognized, evidence-based system for person-centered decision making that transforms the healthcare culture by honoring an individual’s goals and values