Organizations

Altarum

https://altarum.org

a non-profit research and consulting organization that creates solutions to advance health in vulnerable and publicly insured populations

American Psychological Association

https://www.apa.org/topics/death/index

provides resources for end-of-life care

Association for Death Education and Counseling

https://www.adec.org/

an international, professional organization dedicated to promoting excellence and recognizing diversity in death education, care of the dying, grief counseling and research in thanatology

 

Archdiocese of Boston, Initiative for Palliative Care and Advance Care Planning

https://www.bostoncatholic.org/palliativecare

provides education, outreach and advocacy that will create an informed public about palliative care, a multidisciplinary approach to the care of the seriously ill which is patient-centered and family-oriented

 

Ariadne Labs

https://www.ariadnelabs.org

a joint center for health systems innovation at Brigham and Women’s Hospital and Harvard T.H. Chan School of Public Health, develops simple, scalable solutions that dramatically improve the delivery of health care at critical moments to save lives and reduce suffering, including The Serious Illness Care Program 

 

Association for Death Education and Counseling

https://www.adec.org/

an international, professional organization dedicated to promoting excellence and recognizing diversity in death education, care of the dying, grief counseling and research in thanatology

Cambria Health Foundation

https://www.cambiahealthfoundation.org/

the corporate foundation of Cambia Health Solutions, a total health solutions company dedicated to transforming the way people
experience health care

 

Center to Advance Palliative Care

https://www.capc.org/

a national organization dedicated to increasing the availability of quality health care for people living with a serious illness

 

Coalition to Transform Advanced Care C-TAC

https://www.thectac.org/

dedicated to the ideal that all Americans with advanced illness receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity

 

Compassion and Choices

https://compassionandchoices.org/

based in Oregon, provides information about palliative care and end of life care, and is focused on changing laws related to medical aid in dying

The Completed Life Initiative

https://www.completedlife.org

NYC based organization to promote self-determination and dignity at the end-of-life

The Conversation Project

https://theconversationproject.org

an initiative of the Institute for Healthcare Improvement, a not-for-profit organization that is a leader in health and health care improvement worldwide, founded by Pulitzer Prize-winning writer Ellen Goodman and a group of colleagues and concerned media, clergy, and medical professionals gathered to share stories of “good deaths” and “hard deaths” within their own circle of loved ones

 

Death Café

https://deathcafe.com/

a group directed discussion of death with no agenda, objectives or themes

 

Death Over Dinner

https://deathoverdinner.org/

provides a script for people who want to discuss their end of life issues with family and/or friends

 

Elisabeth Kubler-Ross Foundation

https://www.ekrfoundation.org/

a volunteer-based organization inspired by the life of psychiatrist, humanitarian and hospice pioneer, Dr. Elisabeth Kübler-Ross

Honoring Choices Massachusetts

https://www.honoringchoicesmass.com/

a consumer oriented non-profit organization focused on the rights of every adult to direct their health care choices and make a plan to receive the best possible care that honors their values & choices, all through their lives.

Hospice and Palliative Care Federation of Massachusetts

https://www.hospicefed.org/

represents hospices that serve more than 21,000 patients and their families representing 40% of all those who die in Massachusetts

International End of Life Doula Association

https://www.inelda.org/

fosters the use of end of life doulas in hospices, hospitals, communities, and directly to dying people through the service of private practitioners

Massachusetts Caregiver Coalition

http://www.maroundtable.com/caregiving.html

an initiative of the Massachusetts Business Roundtable to support unpaid family caregivers

Massachusetts Coalition for Serious Illness care

http://maseriouscare.org/

created to ensure that health care for everyone in Massachusetts is in accordance with their goals, values and preferences at all stages of life and in all steps of their care

Massachusetts eHealth Institute

https://mehi.masstech.org/

part of Mass Tech Collaborative, the designated state agency for promoting Health IT innovation, technology and competitiveness to improve the safety, quality and efficiency of health care across the Commonwealth of Massachusetts

Massachusetts Health Decisions

https://masshealthdecisions.org/

provides public and professional education on ethical issues in healthcare

Massachusetts Medical Orders for Life Sustaining Treatment

https://www.molst-ma.org/

also called Practitioner Orders for Life Sustaining Treatment (POLST), the Massachusetts Electronic MOLST Completion Web Portal is a joint pilot project of the Massachusetts Coalition for Serious Illness Care, Ariadne Labs and Honoring Choices Massachusetts with support from Vynca, Inc. to document patient choices on a paper and electronic MOLST form

National End of Life Doula Alliance

https://www.nedalliance.org/

membership organization for all end-of-life doulas and trainers

National Healthcare Decision Day

https://theconversationproject.org/nhdd/

exists to inspire, educate and empower the public and providers about the importance of advance care planning, administered by The Conversation Project

National Hospice and Palliative Care Organization (NHPCO)

https://www.nhpco.org/

provides resources and legislative services to hospice care providers

 

Respecting Choices

https://respectingchoices.org/

an internationally recognized, evidence-based system for person-centered decision making that transforms the healthcare culture by honoring an individual’s goals and values